Hello Unity Walkers!
We are the GOCOVRI® Patient Ambassadors, and are happy to welcome you to this website, where you can learn about dyskinesia and GOCOVRI® as an add-on treatment option for dyskinesia and OFF. Like you, we live with Parkinson’s Disease, and we partnered with Adamas Pharmaceuticals to share our stories to help you better understand what it’s like to live with dyskinesia and OFF. We know how important it is to have access to information that can help guide you. We hope that through sharing our experience with you, you will be inspired to take action.
Below you will find a link to Gocovri.com, where you can find more information on Parkinson’s Disease, as well as the differences between dyskinesia and OFF time. Watch the videos of our stories and how dyskinesia has impacted our lives, and what we decided to do about it. When you are ready, you will also be able to access a discussion guide that can help guide you in how to talk to your doctor and ask if GOCOVRI® may be right for you.
We hope this information helps you have informed discussions with your family, community, and healthcare providers. Through better communication, you or your family member can live a better life with Parkinson’s and make the most of each day.
The GOCOVRI® Patient Ambassadors
Visit the Gocovri Website
Learn About Dyskinesia & OFF
GOCOVRI® USE AND IMPORTANT SAFETY INFORMATION
WHAT IS GOCOVRI?
GOCOVRI ® (amantadine) extended release capsules is a prescription medicine used:
- for the treatment of dyskinesia (sudden uncontrolled movements) in people with Parkinson’s disease who are treated with levodopa therapy or levodopa therapy with other medicines that increase the effects of dopamine in the brain.
- with levodopa and carbidopa in people with Parkinson’s disease who are having “off” episodes.
It is not known if GOCOVRI is safe and effective in children.
IMPORTANT SAFETY INFORMATION
Before taking GOCOVRI, tell your doctor about all medical conditions, including if you:
- have kidney problems ; unexpected sleepiness; take medicine to help you sleep or that makes you drowsy; have mental problems, such as suicidal thoughts, depression, or hallucinations; unusual urges including gambling, increased sex drive, compulsive eating, or shopping; or if you drink alcoholic beverages
- are pregnant or plan to become pregnant or are breastfeeding or plan to breastfeed. GOCOVRI may harm your unborn baby and can pass into your breastmilk
Tell your doctor about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. Especially tell your doctor if you take medicines like sodium bicarbonate.
WHAT SHOULD I AVOID WHILE TAKING GOCOVRI?
- Do not take GOCOVRI if you have severe kidney problems
- Do not drive, operate machinery, or do other dangerous activities until you know how GOCOVRI affects you
- Do not drink alcohol while taking GOCOVRI as it can increase your chances of serious side effects
- Do not stop or change the dose of GOCOVRI before talking with your doctor. Call your healthcare provider if you have symptoms of withdrawal such as fever, confusion, or severe muscle stiffness
- Do not take a flu nasal spray while taking GOCOVRI, but you can receive a flu shot
WHAT ARE THE POSSIBLE SIDE EFFECTS OF GOCOVRI?
GOCOVRI may cause serious side effects, including:
- falling asleep during normal activities, such as driving, talking, or eating, while taking GOCOVRI. You may fall asleep without being drowsy or warning. The risk is greater if you take GOCOVRI with medicines that cause drowsiness
- suicidal thoughts or actions and depression
- occurrence or worsening of hallucinations (seeing or hearing things that are not real)
- feeling dizzy, faint or light headed, especially when you stand up too quickly, when first starting GOCOVRI, or if your dose has been increased
- unusual urges including gambling, sexual, spending money, binge eating, and the inability to control them
If you or your family notices that you are developing any new, unusual or sudden changes in behavior or related symptoms, tell your healthcare provider right away.
Be sure to take your medicine at bedtime as instructed. You may take GOCOVRI with or without food.
Please see the Full Patient Prescribing Information for additional important safety information here.